EDUCATION

The Disorder

Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. The involuntary muscle contractions cause twisting, repetitive and patterned movements as well as abnormal postures. Dystonia is not a single disease but a syndrome – a set of symptoms that cannot be attributed to a single cause but share common elements. Some forms of dystonia may affect a specific body area, such as the neck, face, jaw, eyes, limbs or vocal cords.

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300K +

People affected by dystonia in North America

3rd

Most common movement disorder in the U.S.

50%

Chance each child of a parent having the abnormal gene, carrying the defective gene.

RAISING AWARNESS

Do You Know What Dystonia Is?

Down with Dystonia raises awareness via various advertising campaigns and social media marketing efforts. With our vast knowledge and personal experience with dystonia, we aim to support individuals living with the disorder and their families through research, education, financial support, awareness campaigns, and more. Watch our YouTube video to learn about our cause and get a glimpse into our capabilities. Please like and share the video and subscribe to our YouTube channel to be notified when we post new content.

MISSION, VISION & VALUES

We’re Here to Make an Impact

Our mission is to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder. Our goal is to provide a platform where patients and their families can learn about dystonia, its symptoms, and it’s treatments.

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TREATMENTS

Improving Quality of Life

Properly treating dystonic symptoms depends on the patient’s age, mental and physical health, type of dystonia, affected body parts, and many more variables. This makes it an especially difficult condition to diagnose and treat. Positive results have been recorded with the use of noninvasive techniques such as breathing techniques, as well as with surgical options like deep brain stimulation (DBS) therapy.

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GET INVOLVED

Make a difference

Support the fight against dystonia today with a donation! Your contribution will help fund research, awareness campaigns and support proper diagnosis. We provide financial assistance to individuals living with dystonia and their families to help with treatment, accommodation, or adaptation costs not covered by insurance.

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Your support makes our work possible. A donation of any amount will help raise awareness and support our efforts to transform the lives of those living with dystonia.

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Events and Campaigns

It all starts with our family, friends and concentric circles. Please join us as we create a splash and help those with dystonia lead lives full of passion!

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Become an Advocate

The first step to getting involved—whether you live with dystonia, love someone living with dystonia, or simply want to help us spread our message.

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Read Our Latest Posts

Down with Dystonia Launches Medical Advisory Board

The Medical Advisory Board will include neurologists and researchers specializing in movement disorders. They will advise the Board on the strategic direction of the organization, review content shared on the website treatment pages, and recommend publicly available research studies to share on the website and social media pages. Down with Dystonia is looking for experts in their field who are passionate about helping us to bring down dystonia

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WHO WE ARE

UNDERSTANDING DYSTONIA

TREATMENTS

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